So far, I'm not much of a blogger, but then again I haven't told anyone about this this yet so I guess it's alright. So, Justin is having surgery. Can I just tell you that I know it isn't going to be fun for him, but I am soooo less than excited about this whole ordeal. I am WAY to stinking high strung to handle this kind of thing. When he had his last surgery I think I almost died of ANXIETY while he was in the OR. I'm pretty sure that his parents probably thought something had gone drastically wrong when I called them after talking to the surgeon and pathologist because I was sobbing uncontrollably. I'm kind of dysfunctional like that. It was much better news than we had expected, but I was borderline hysterical. It was the stress, I swear. They tell you they are going to to a 3-4 hour surgery to find out what kind of cancer your husband has, and 7 (yes, SEVEN long, lonely, anxious) hours later they come out and say "Mrs Pasley this is Dr So-And-So, and we brought him in as a pathologist for your husbands surgery. Let me tell you about my part and then you can talk to him. I was able to do my part without having to use a full incision, but I did have to make more incisions for the laproscopic biopsy because it was pretty involved". Pretty involved?!?!! I'm thinking that's an understatement. So then Dr So-And-So starts, and what does he say? "I'm the head oncology pathologist here and I'm honestly more confused now than I was when we started. This is no kind of cancer I have ever seen before." At this point, he lost me. I was done, FINISHED, gone, however you want to put it, there was nothing else that processed for me. How in the world could my husband be at Stanford- with their head oncologist, and have a kind of cancer that they had never seen before?!?! Come on, it's STANFORD. They are one of the leading hospitals in the nation. Was this guy kidding me?
Very fortunately, no. He wasn't kidding me. While it was 2 long weeks before we got a call with a diagnosis, it wasn't in fact cancer. Woo-Hoo! What Justin heard when he talked to the Dr was "cattleman's" disease and let me tell you, I freaked out at that because it had to be really rare, I couldn't find it ANYWHERE on the Internet. Yeah, that's because my husband needs to learn to listen and it is CASTLEMANS. Still rare, but at least you can find information on it!
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